It seems like forever since I last made a blog post. I guess it's been a mixture of being busy and not really knowing what to blog about. I realize that the last time I posted anything, it was the dead of night when I was really tired, but at peace, and my mind was on a one way ticket to nowhere. Since then, a lot has happened. I've started school again and also became stage manager for Crimes of the Heart. But I guess the biggest thing that has happened to me since my last post was that I went into DKA (diabetic ketoacidosis). I've been hesitating to talk about it for a long time because it's something that I haven't been wanting to talk about, but I think now is the time to finally give a story about what my experience was like.
I
hadn’t been taking care of my diabetes like I should. I wasn't skipping
insulin dosages or anything, but I wasn't taking my blood sugar. It's something I haven’t told anyone because I was and still am honestly scared of the
questions. “Why? Do you know how dangerous that is? Why would you not take your
blood sugar?” I honestly don’t know why. I think that maybe I just stopped
because I wasn’t happy with the numbers. I didn’t want to see them anymore, so
I stopped instead of telling people and asking for help. I couldn’t get myself
regulated. I was so frustrated, and I guess after a while, I began thinking,
“Why?” I never thought DKA was going to happen, so I kept abusing my sugar
checking. Note to any diabetics who are doing anything remotely close to this: PLEASE ask for help!!! Don't make the same mistake I did!!
Wednesday
night, August 15th, I missed my lantus bedtime shot. It wasn’t on my mind, and I stayed
up all night because my sleeping schedule was screwed up. So I slept all day,
which means I didn’t eat anything. It wasn’t until around 8:30 p.m. that I woke up,
and I felt awful. I checked my ketones and saw that they were large. In case you don't know what ketones are, it measures how much sugar is spilling into the urine. I
thought, Don’t tell anyone. I was
scared. I didn’t want anyone to know I was abusing my health (again, huge mistake). So I just stayed
silent. I walked out into the kitchen and all of a sudden had a dizzy spell,
and I told my mom to go get me some cold cloths. I sat down and put my head in
between my legs, and then my mom held a cloth against my neck while I held one
on my forehead. I had gotten a large, 32 oz. glass of ice water since I knew my ketones were large, hoping I could flush them out without anything bad happening, and I told my mom that I just needed some food since I
hadn’t eaten. But my stomach was all in knots and I felt nauseated, so I just
kept drinking water. I took my blood sugar and it was 450 something (can’t
remember the exact number), and I took 8 units of insulin to try and get it
down. My mom kept asking if she needed to call the diabetes doctor. I kept
saying no, and (this part may be a little out of order) I think I threw up the
water I had been drinking, but I was wondering how anything could be coming up at all considering I hadn't eaten all day. It was then that I told her to go ahead and call the doctor. My
mom told me to check my ketones, so I did and they were still large. When the doctor
got on the phone, she asked me what had been going on. So I told her I missed my lantus dose and had
slept all day, and that I had taken 8 units of insulin. She told me to take 12
more and to sip water, because if I gulped it, I would throw up again, and to
call again in two hours to report my blood sugar and ketone level. I felt better after puking and tried sipping water instead of gulping it down,
but I guess I wasn’t doing it slow enough, because an hour later, it came up
again. My mom called the doctor once more, and she asked me if I wanted to try
it one more time. So I said okay and sipped extra slow. I was able to keep it
down, but I was having hot/cold sweats on and off, and at 11 p.m., my blood sugar
had gone down to 338 I think it was. We called the doctor again and told her,
and she said I had two choices. I could either drink water all night to flush
the ketones, or go to the ER and get myself flushed faster without throwing up.
I was so worn out already and was afraid that if I fell asleep, I would slip
into a coma and die. So I told her I would go to the ER. I figured that if I
did that, I would at least have people watching me around the clock.
My
mom and I walked out into the garage. I was a little dizzy, but I felt fine enough to
walk, and made it into the seat okay. I had my pillow, blanket, and Savage with me for comfort, and reclined back but kept my eyes open as we headed to Progress West. I texted Shane telling him what happened and that I'd be fine, and he
was worried sick, but I guaranteed him everything was going to be okay. Then I laid back for the rest of the ride there, telling myself not to fall asleep. I felt like we got there fairly quickly, and I was still wobbly walking in, but I felt okay. My mom checked me in at the desk while I went to sit down, and I was hoping that the wait wouldn't be long. Luckily, it wasn't. They took me back to the room quickly and a nurse began asking me
what happened, so I started telling her the same thing I told the doctor on call. Not too far into the questions, I began to feel dizzy and broke
out in a sweat. The room became freezing cold and blistering hot at the same
time, and I told my mom it was really hot. She began fanning
me, but I told her to quit because it was making me colder, and I couldn't seem to find a happy medium. I reached for her hand and held it, staring up at the lights, which had become brighter than they normally would
have been. Everything felt so unreal, and I was aware of my surroundings, but they didn't seem tangible, if that makes sense. It almost felt like they were figments of my imagination. I felt so weak, and I wanted
to close my eyes. But as tempting as sleep was, I was afraid. I kept thinking
about Shane and how I couldn’t leave him behind. I could feel my
body trying to slip, trying to give up, and I fought it and fought it with Shane’s image in my
mind. Don’t give up. Shane needs you.
Don’t give up. You can't leave him here. I forced myself to stay grounded, and each time I wanted to give in, I told myself no. I could feel the sweat gathering on my forehead, and my mom
said she could see the beads of perspiration on my skin. The nurse finally got done
with whatever she needed to do and asked if I was okay to walk back into the
waiting room. I wanted to say, "Are you kidding me? Do you not see how weak and miserable I am right now?" But I was too tired and miserable to use heavy sarcasm. Totally drained, I said, “I don’t want to move.” So she let me
sit there and said she would get me started on my fluids right away.
Right
away felt like forever. My mouth was completely dry, and I told my mom I wanted
water. She asked if I could have some, and they said no, that my fluids were
being prepared. The thirst was so horrible that I almost told them, “Look, if
you don’t give me water, I’m going to die. Do you understand that?” But I held
my tongue. I was too weak to argue. Too weak to fight. I waited for what felt
like hours, and finally the nurse came in and gave me an IV with
nausea medicine and fluids. After that got in me, she asked me if I was okay to
walk. I said yes, so she took me to a room with a stretcher because all the
other rooms were taken. But I didn’t care. I just wanted to lie down. Once I
got onto the stretcher, I began to shiver, teeth chattering, so the nurse got me some heated blankets which felt
amazing. I was finally feeling better, and they gave me an equivalent of two 2
liter bottles of liquids. A male nurse came in to draw blood gases (which measures the CO2 and Oxygen levels in your blood) and it didn't hurt too badly. After a few hours had passed, they asked me if I wanted a drink. I thought, Yes! Finally, I can drink something without puking! So I drank a small diet coke and they moved me into a different room. They also took a urine sample and saw that there were still ketones, so they decided to start another drip. One of those drips was potassium, and after I had taken my potassium pills, I figured that was it. But in no time flat, my arm started burning. It felt like there was fire coursing through my veins, and I was afraid that the I.V. had slipped out of the vein. I pressed the nurse call button and gritted my teeth, not being able to stand it. The male nurse came in and attached a new fluid drip to dilute the potassium, and then I was fine. After
being there for about four hours, they told me they would have to admit me
because not all of the… I’m just going to call it acidity since I can't remember the correct term, was out of my system
yet, and that it would take longer than a few hours to flush it. They gave me
another IV (blew one vein), and I was on so many liquids that night that they
said I had “the bath.” They wheeled me up to a room, and so many nurses and
doctors came in that I felt very overwhelmed. I thought, "How many people does it take to take care of one diabetic?" They got me into bed and put
around five or six electrodes on me in addition to the IVs, and they also had
been taking my blood sugar every hour of the night (which had been improving, by the way). One of the doctors asked
me, “Have you ever been in DKA before?” and I answered, “No.” But just hearing
her ask the question shocked me. I had heard of DKA so many times, but I never
thought I’d go in it.
I
tried to sleep that night, but it was hard with the nurse coming in every hour
and taking my sugar. I thought angrily, I’m
right back to where I started when I got diagnosed with this fucking illness.
Nothing has changed a bit. How did I let it get this bad? How could it have
come to this? It was just one of those things where I kept calling myself a dumbass for letting my diabetes get so out of hand. I was furious with myself and wanted to cry. What was even more annoying was that each new nurse or doctor
who walked in said, “Now, they told me what happened, so let me run the story
by you and you tell me if it’s correct.” And they kept getting it wrong. So it
was like I had to tell them what happened over, and over, and over again. Each
new person frustrated me, and all I wanted to do was rest. My body was
exhausted. The doctor even came in at one point and asked me what had hapened that caused me to go into DKA. I told her the lantus story, but I knew that DKA didn't just happen over night. DKA happened when you abused yourself over a period of time, and by the way she was looking at me, I think she knew I was bullshitting her too. Then she asked me if I smoked, drank, or did drugs. I told her no, and she gave me this look like I was lying and goes, "Are you sure?" I immediately answered with, "No. I don't do that stuff," because everyone knows I'm 100% against that stuff, and she moved onto the next question. Finally, I don’t even remember when, the nurses finally let me
sleep. I had told my mom beforehand to go home because she fell asleep and was
snoring, and I couldn’t sleep with that because she has bad sleep apnea. So I
finally got some rest, and around one o’clock, I was awake and ready to eat. My
mom came back up, and I was having muscular pain in my chest. I had to ask
three times for Tylenol because apparently there was a miscommunication, and that hurt pretty bad. They told me that it was probably due to stress after what all had happened. Then I
ate and got to take a walk down the hallway. I was still a little out of it when I did that, but I could walk pretty dang well! When I got back to my room, I fell asleep again for I don’t
even remember how long, and they finally told me I could go home. They wheeled me down to the first floor and out to the van, and once I got home, I slept for a
while and then was woken up for dinner. But thank God I was home.
Going
into DKA was scary, but it was a wake-up call. Diabetes can kill you if you
don’t take care of it, and even if you don’t think you’ll ever go into DKA, it
is possible. I had bruises in the crook of my left arm and on my left wrist,
and when I wasn't looking at them, feeling the ache
was a reminder of what happened. I keep thinking about how close I was to losing
my life that night, and how many people I scared because I simply didn’t want
to deal with this stupid diabetes anymore. I had plenty of “I love you” texts
when I told my friends what had happened, and my mom had updated her Facebook
status way before I did, so some people were already scared for me. I feel so
ashamed to have done this to myself, because it honestly was like a form of
suicide that I was ignoring.
When I go to the doctor again, if they ask me what happened, I plan on telling them the truth about not taking care of myself. But I don’t want to hear the lecture
of how dangerous abusing diabetes is because I know now. I experienced nearly dying, and
that should be enough to get me out of any lecture. After I got home, my parents kept bugging me
about checking my sugar and ketones and about doing my insulin shots, and it was
really starting to annoy me. But I kept reminding myself that if I had been
taking care of myself like I should have, they wouldn’t have had a reason to bug
me. So I couldn’t really hate them for that.
For the first couple weeks after my release, it felt like every other thought I had was diabetes related. It had once
again became the center of attention, like there was nothing else that existed besides insulin, blood sugar, ketones, food, insulin, blood sugar, ketones, food. I had no
desire to write or do art. I didn’t want to sleep because in the morning I knew I'd
have to take my sugar and insulin to eat, and I’ll be told to check my ketones
each time I went to pee, and to check my blood sugar every couple of hours to make sure it wasn’t going too high or low.
I didn’t and still don't want my diabetes to be the center of
attention for everything. I don’t want to be known as the diabetic who everyone
needs to worry about. I just want to be me in a diabetes-free world. I don’t
want to have this anymore, and it really sucks because there’s not a single
thing I can do about it. I don't want diabetes to define me, but because of what I did, everyone will continue to worry, wondering if it will happen again, and I know they mean it in the most loving way. Trust me, I felt like shit for putting my friends in a position where they thought I was going to die, and for that, I will never forgive myself. I just don't want people to associate "Stephanie Pabst" with "diabetic."
Diabetes,
I hope that one day, a cure fucks you over so hard that you’ll no longer be a
threat to anyone anymore. Not to my future children, grandchildren, or anyone
else down the line, and not to anyone else's future family either. And I hope to someday be a ninety year old woman who can
eat all the cake she wants and say “I might die from this cake, but at least it
won’t be because of you.”
My blood sugars are doing great and I do my insulin shots before each meal. I've been remembering my lantus pretty well (it's only been twice that I forgot since the hospital), and if I forget, I always let my mom know and take half a dose to keep me stable for the rest of the day. Things are getting better, and I'm taking care of myself like I should.
Diabetics, if things aren't going well, I know how scary it is to speak up, but please tell someone. There are ways to help stabilize you and get you back on track, and it's better than abusing yourself and causing your loved ones to worry over you like mine did. It isn't worth it.
They said I danced on the edge without going over.
Diabetes, you
will never do this to me again. Never.
There is too much to live for.